At the Summit on Fatigue and Health, Dr. Leonard Jason provides an excellent description of the many trials and tribulations of people who are struck down by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). As a sufferer of ME/CFS, I can attest to the accuracy of the picture he paints throughout his presentation. It’s probably one of the best, easiest to understand descriptions of what it’s like to exist with this disease and I highly recommend it’s viewing by practitioners, patients and caregivers of people with CFS. It’s an excellent discussion to share with anyone in the life of an ME/CFS patient.
He also spends a lot of time on the Principles of Social Change, which he has written a book about. He outlines five principles of social change that we can utilize to change the stigma and disbelief surrounding ME/CFS.
Dr. Jason also maintains a blog where he discusses recent trials, treatments and other great information about virology and ME/CFS. His latest post is a great discussion of the PACE study and it’s “sister study”, which has been debunked by many ME/CFS experts like Dr. Jason.