Phoenix Rising is one of the few exceptional sources for all things ME/CFS. According to the website, “Phoenix Rising provides people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) information to support their health and well-being. We publish articles and a newsletter, maintain the largest ME/CFS forum in the world, and have the biggest database of information about ME/CFS on the web.” They also have a calendar where you can find out what’s going on all around the world in regards to ME/CFS education, resources, conferences, etc.
If you can’t find what you’re looking for among their huge database, you can always post your question in one of the forums. You’ll find that folks are pretty helpful and interested discussing solutions they’ve found for the problem you seek to change. I haven’t been a member very long, but I was thrilled when I found them. I find myself going back to them again and again for information I can find no where else.