Sometimes I really do feel like the world is against ME/CFS patients, on a mission of total annihilation through a campaign of denial, dissemination of misinformation and perpetual mistreatment. While writing up a post seeking some volunteers for this here crib, I did a search for a quick list of autoimmune conditions. One of the first search results in the list was for the American Autoimmune Related Diseases Association’s List of Diseases. I noticed immediately that while they had ME/CFS and Fibromyalgia doubled asterisked (**). This is the very important “fact” they wanted to “**NOTE: Fibromyalgia and Chronic Fatigue are listed, not because they are autoimmune, but because many persons who suffer from them have associated autoimmune disease(s)”
Wait. What? I know it can be tough to keep up with the times, but it’s been a few years since it’s become an established fact that these illnesses ARE AUTOIMMUNE diseases in their own right, but this supposed Association that’s supposed to be supporting people with autoimmune conditions in the US doesn’t even fucking know it? That’s right, people! Welcome to America, where ignorance reigns and what you hear on Dr. Phil is law, even to care providers 😦
I don’t think I’ll be relying on this organization to provide up-to-date info on any topics for this blog, on that you can certain.