The Disability Award

I am so proud to have been selected by Stacey Chapman over at Fighting with Fibro for the Disability Award. It’s always an honor to be recognized by fellow bloggers for our contributions, especially so when you admire that person and their work. Thanks so much, Stacey! I’d nominate you right back in a heartbeat, if the job weren’t already done.

As part of accepting the award for the Zebra Pit, there are a few questions to answer from Stacey before making my  own nominations for a few blogs I’ve come to rely on and really enjoy.

Here are the questions Stacey gave me, along with my answers:

  1. What was the first sign of your illness? I’m not sure if it was my hypermobility or my “unusual allergies” and poor immune system that made me first question my health.
  2. What is your worst symptom and how do you cope with it? I’d say for me my worst symptom is the cognitive dysfunction that accompanies my conditions. When it gets really bad, I am a completely different person. On even my best days, I have no short-term memory, terrible long-term memory and can no longer do math in my head beyond basic 2+2=4. It wrecked my writing career and makes what I can do to earn a living very limited. People really seem to resent that I’ve “changed so much” so I know it affects my personality and emotional IQ, as well.
  3. What one thing about you has changed as a result of your struggles? If chronic illness gifted me with anything, it was in learning patience for myself and others. I used to want everything to happen yesterday and made a game of trying to get things done right as fast as possible. I yelled at slow cars in traffic and often complained about the time it took others to complete tasks. Being chronically ill, all you do is wait. Wait to see the doctor. Wait for new treatments. Wait for a diagnosis. Wait for someone else to do something I can no longer do myself. As my own body and abilities have slowed what I can do significantly, I’ve learned that taking our time is a luxury we should all enjoy.
  4. What words of advice or encouragement would you give to someone else suffering? I would tell them never to give up on searching for answers and trying to achieve your best health, but not to rely on anyone else to do it for them. The Western model of healthcare is not about prevention or even healing. It’s centered on pharmaceuticals and surgery; the things with big industry price tags. Most doctors know little to nothing about how to achieve the healthiest life possible in good health, let alone with chronic illness. Seek out the good resources and talk to your fellow patients! You’ll improve if you keep working at it.
  5. Name one good thing that has come out of having chronic illness. Well obviously it’s the Zebra Pit! I never would have started a health and wellness blog if I wasn’t forced to find my own solutions and then desired to share them with others.
  6. What one thing do you disagree with that is widely accepted as true about your condition? That it’s RARE. There is nothing rare about EDS or even trifecta zebras at all. What’s rare is when EDS is diagnosed correctly.
  7. If you could changed only one aspect of your illness, what would it be? Again, my brain fog. Wouldn’t mind a tich more energy, either.
  8. Name the one thing that works best for you for symptom relief. myofascial therapy such as FasciaBlasting. I have no doubt I’d still be bedridden without it.
  9. Based on your experience, what is one thing that you would tell someone newly diagnosed with chronic illness? Congratulations! Now you can learn how to properly care for your body and get some relief.
  10. Why did you start blogging? I wanted a space where I could talk about my illness and the things I was experiencing both physically and emotionally with anonymity. I didn’t really know what it would become at that point, but I sure am glad it evolved into what we know today!

As part of my nomination, I am to choose other Disability Bloggers to honor with this award. It wasn’t easy to choose! Here are my nominations:

For my nominees: in your post about winning this award, please answer my questions below, choose and list your own nominees and develop your own set of questions. Finally, please display the award picture provided.

Nominee questions:

  • What motivated you to start blogging?
  • What’s your favorite topic to write about?
  • What’s your favorite type of blog to read?
  • Name a valuable lesson you’ve learned that you might not have without your conditions?
  • What do you consider to be the worst thing about your conditions?
  • What’s your favorite thing to do for self-care and relaxation?
  • If you could go anywhere in the world, where would it be?
  • Where do you find inspiration on the bad days to help keep you writing?

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7 thoughts on “The Disability Award

  1. Wooohoooo congrats on the well-deserved award! I loved reading your answers. I also find the brain fog aspect so incredibly frustrating and saddening, so I’d definitely want to change that and definitely yes to more energy. We can but dream, eh. xx

    1. My goal in life is to keep improving these in whatever way I can, but I do wonder if it’s gotten as good as it ever will. As it is, my husband and I already joke that my blood is mostly antioxidants by now! By the way, I really wanted to nominate you, but of course Stacey beat me to it! She picked so many of my favorite bloggers. Damn it if we aren’t ALL just fabulous! xx

      1. I think there’s always room for change, space and opportunities for things to get better, even when you can’t see how yet.
        It made me chuckle about your blood being mostly antioxidants. I think my blood is 70% tea, 43% hot chocolate!
        Aw that’s very kind of you about the nomination! I think you’re right, we’re all faaaabulous! 😉😄xx

        1. Lol. I wouldn’t mind if my blood were still a river of chocolate! Yum! Maybe someday I’ll be able to enjoy it again … because you’re right, you never know what we’ll find next to improve our health and what we can have. And I love your optimism! Xx

  2. Awww. Thank you so much, Michelle! That is such a tremendous compliment, I’m truly honored. You are quite deserving of such accolades! I really love your answers to all of my questions! They were great!! And now I have some great new Blogs to check out at your suggestion! Thank you! <3 Stace

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