Identifying 7 Types of Head Pain in EDS & FMS

In order to help you identify the type of head pain you're experiencing, here's a few tips for identifying and treating them based on my own experiences. Remember, every patient can be different and ultimately the treatments you choose should be made in consultation with the doctors on your care team.

7 People with Chiari and CCI Share Their Stories

Maura was diagnosed with Chiari I in 2007 at age 6 via a traditional horizontal MRI. “I had a decompression shortly after diagnosis and had significant relief for 8 months. After that symptoms returned but slightly differently, so I had a full decompression. Turns out it was craniocervical instability that caused the symptoms to return after the first decompression so the second decompression was ineffective.”

Lumbar Puncture

Lumbar Puncture can be a scary procedure to face for the diagnosis of #CSFleak, Intracranial hypertension, central nervous system dysfunction and many neurological illnesses. Get the facts aobut this procedure now, from beginning to end, so you know what to expect.