Study Points to More Effective Treatment than IV Infusions for Low Blood Volume in OI, POTS

The study revealed that both saline and ORS are effective in the short term treatment of OI. However, the ORS, with it's combination of sugars, potassium and sodium, was proven to be even more effective than the saline. While simple sodium can help raise blood volume, ORS still seems to be the better option, according to this study. Better yet, ORS is readily available, as well as affordable and it doesn't require a visit to an infusion center or the use of ports and is obviously much less invasive, providing fewer risks than any venipuncture.

When Superman Gets Sick

I’ve suffered from chronic pain and illness for most of my life, but never to this extent. As I have gotten older, particularly over the last five years, fatigue, pain, and feeling lightheaded almost to the point of blacking out have made for the most oppressive of companions. Now, all of that may finally becoming to a head. Currently I’m on medical leave of absence from my job.

7 People with Chiari and CCI Share Their Stories

Maura was diagnosed with Chiari I in 2007 at age 6 via a traditional horizontal MRI. “I had a decompression shortly after diagnosis and had significant relief for 8 months. After that symptoms returned but slightly differently, so I had a full decompression. Turns out it was craniocervical instability that caused the symptoms to return after the first decompression so the second decompression was ineffective.”