Keeping Up with Research 

Ever been amazed by how some people always seem to know what's going on with the latest advances in research and testing for their particular disorder? Want to be one of those people? You can spend everyday googling, going to pubmed and the NIH performing keyword searches and hoping you come up with the latest … Continue reading Keeping Up with Research 

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Dietary Changes to Improve Every Spoonie's Health, Pt. 2

When I wrote part 1 of this article and spoke about the known effects of glyphosate (aka roundup) in the body and the possible effects, I couldn't find any studies to back up my suspicions that glyphosate and other herbicides and pesticides like it are contributing to the major uptick in autoimmune, connective tissue and neurodegenerative diseases … Continue reading Dietary Changes to Improve Every Spoonie's Health, Pt. 2

Dietary Changes to Improve Every Spoonie’s Health, Pt. 2

When I wrote part 1 of this article and spoke about the known effects of glyphosate (aka roundup) in the body and the possible effects, I couldn't find any studies to back up my suspicions that glyphosate and other herbicides and pesticides like it are contributing to the major uptick in autoimmune, connective tissue and neurodegenerative diseases … Continue reading Dietary Changes to Improve Every Spoonie’s Health, Pt. 2

Neurontin/Lyrica Block Formation of Synapses in Brain

As I know MANY spoonies who are on Neurontin or Lyrica, I wanted to put this out the second I saw it (see below). I took it myself on two separate occasions and felt within a short period both times that the drugs were doing more harm than good for myself, even though they dulled … Continue reading Neurontin/Lyrica Block Formation of Synapses in Brain

NIH Releases FAQ on Hereditary Alpha Tryptasemia 

If you read the article I shared about the discovery of the new disease hereditary-a tryptasemia, then you're probably wondering if you can go to the doctor to be tested for it. According to a FAQ released by the NIH, there is no commercially available test to confirm the multiple copy DNA strands which cause the … Continue reading NIH Releases FAQ on Hereditary Alpha Tryptasemia