Given that I spent most of the last 10 months in my bed, I thought it would be a great time to talk about the essential items every bedbound person needs and what we must have if we're going to be left alone for any chunk of time. Of course, I want my readers to not only survive, but thrive. So, I'll be sharing some ways I've learned to be bedbound and still feel fulfilled.
Exercise is essential for the healthiest body possible with EDS, but not all exercise is right for the condition. Find out what exercise works and how to do them safely in this post.
The Holidays are coming and with them comes a whole lot of changes and feelings when you live with Chronic Pain. I'd like to share some tips and include some items that may help to make the season easier to manage this year.
Meet McKenna Harwell and her unparalleled planner for spoonies, the Warrior Life Planner, coming out soon for 2019.
The Ehlers Danlos Society has begun releasing the videos and slides from their 2017 EDS Global Learning Conference. I'm going to provide each in posts over the next several days/weeks as they get released. These presentations are often packed with great information for patients on new and interesting developments from studies, clinical trials and the … Continue reading EDS: Practical Pacing & Fatigue Mgmt