An Albino Zebra representing Ehlers-Danlos Syndrome

What is Ehlers-Danlos Syndrome (EDS)

Learn all about Ehlers-Danlos Syndrome (EDS) in this article which explains the symptoms and how EDS is diagnosed based on the 2019 criteria. You'll also learn the 13 subtypes of the condition and why we use the zebra as a mascot to represent EDS and other rare genetic disorders.


EDS: Practical Pacing & Fatigue Mgmt

The Ehlers Danlos Society has begun releasing the videos and slides from their 2017 EDS Global Learning Conference. I'm going to provide each in posts over the next several days/weeks as they get released. These presentations are often packed with great information for patients on new and interesting developments from studies, clinical trials and the … Continue reading EDS: Practical Pacing & Fatigue Mgmt