Learn all about Ehlers-Danlos Syndrome (EDS) in this article which explains the symptoms and how EDS is diagnosed based on the 2019 criteria. You'll also learn the 13 subtypes of the condition and why we use the zebra as a mascot to represent EDS and other rare genetic disorders.
The Zebra Pit is thrilled to offer the first of many posts on Autism Spectrum Disorders. In this post, Capricious discusses her recent experience with being evaluated for ASD and the distinct differences in the presentation of autism in females that can prevent women from being properly diagnosed.
Putting my life into perspective now that I finally have a diagnosis of hypermobile Ehlers-Danlos Syndrome. Understanding the first symptoms, how EDS progressed for me and a few of the factors that kept me from getting a diagnosis before age 44.
Tips on how to find a specialist to diagnose your rare disease, how to prepare for your appointment and what you need to provide so your specialist can make the best diagnosis possible.
This post is an update on my neurology consult, discussed here: Recovery is My Full-time Job Anymore it seems every time I go in for a consult with a specialist, I’m in for a real mind-fuck. I guess I shouldn’t be surprised, I am consulting with neurologists J. It took me several days to process … Continue reading Neuro Consult=Mind Blown