The underdiagnosis and treatment of Craniocervical junction disorders are experienced worldwide, in both private and public healthcare systems today. We will explore this phenomenon through the use of two primary sources; a review of current literature available on the subject and direct patient feedback I collected through interviews conducted in writing with people who have been diagnosed with Chiari and craniocervical instability (CCI), also known as Occipitoatlantialaxial Hypermobility.
Learn all about Ehlers-Danlos Syndrome (EDS) in this article which explains the symptoms and how EDS is diagnosed based on the 2017 criteria. You'll also learn the 13 subtypes of the condition and why we use the zebra as a mascot to represent EDS and other rare genetic disorders.
The Zebra Pit is thrilled to offer the first of many posts on Autism Spectrum Disorders. In this post, Capricious discusses her recent experience with being evaluated for ASD and the distinct differences in the presentation of autism in females that can prevent women from being properly diagnosed.
Now that I finally have a diagnosis of Ehlers-Danlos Syndrome (EDS) and have a complete picture of my health, what I believe went wrong to make me so sick and the ways I’ve worked to combat many of those problems, I felt it might be constructive for myself and others if I took the time … Continue reading My Ehlers-Danlos Story
Crack open the champagne, my #spoonie friends. The day many of us dream about for years has finally come upon me. I’m happy to announce after 17 years of desperately seeking answers to my myriad strange health problems, I finally have a definitive diagnosis that not only fits my entire health history, but that of … Continue reading Being Diagnosed with #EDS