Pinterest pin with book cover says "Book Review: A Light in the Darkness: A valuable and inspiring memoir from a musician with Dermatomyositis of hope & healing through creativity for spoonies.
Making the tough decisions when your chronic illness isn't compatible with your job and the heartbreak that ensues after another failed attempt at working.
Right now, I feel like a sloth mired in molasses. It started with a minor bout of sinusitis and no matter what I do, I can't seem to get my butt in any gear other than the lowest of the lows right now. I feel as if you clocked me, you might find I'm moving … Continue reading Drained
This doctor lead presentation discusses autonomic dysfunction in EDS, such as orthostatic intolerance, neurally mediated hypotension and postural orthostatic tachycardia syndrome.
Putting together a few more pieces of the dysautonomia puzzle, from the imporatance of electrolyte supplementation regardless of medications and the need to vary the amount based on activity levels.