Are Mast Cell Activation Disorders (MCAD) being missed and heavily under-diagnosed in a large portion of patients with chronic illness? Could these easily misunderstood conditions be the cause of the rapid fluctuations in your health? Do you start out having a great day, only to have your energy levels plummet within hours or moments of … Continue reading Are Most Spoonies Suffering from MCAD?
Crack open the champagne, my #spoonie friends. The day many of us dream about for years has finally come upon me. I’m happy to announce after 17 years of desperately seeking answers to my myriad strange health problems, I finally have a definitive diagnosis that not only fits my entire health history, but that of … Continue reading Being Diagnosed with #EDS
Tips on how to find a specialist to diagnose your rare disease, how to prepare for your appointment and what you need to provide so your specialist can make the best diagnosis possible.