Recently, I had the pleasure of getting to know a person with ME/CFS from down under with some big motivations-to help other ME/CFS sufferers find the improved health and vitality he's been able to find for himself-using his great new app for iphone and he was gracious enough to give me five codes to raffle … Continue reading Win an Ease ME/CFS Helper App
I had to share this harrowing experience Jenny conveyed on her blog. I myself have never experienced full paralysis and hope I never do, but I have had more than my fair share of frustrating experiences with hospitals and doctors who are condescending and clueless, as well you know.
My heart goes out to Jenny and I hope this experience remains an isolated incident for her. These kinds of experiences are exactly why people with ME must stick together and share what works with the community at large. We need each other and the few treatments we find, either alone or with health care providers. We also need the emotional support we can provide one another, as no one understands quite like another person with ME, even if we all experience this disease somewhat differently.
One of the things that has kept me away from my blog for so long are fits that I have self diagnosed as paroxysmal dystonia. At this point, they are self diagnosed because my Neurologist-make that FORMER Neurologist-thought it was simply sufficient to put me through an EEG to verify that I wasn't having epileptic … Continue reading Paroxysmal Dystonia
I am a person with myalgic encephalomyelitis (chronic fatigue syndrome, or ME/CFS) and for the last six months or so I have been stuck in the severely ill category. What this category means is that I am confined to my bed the majority of the time, unable to care for myself or function normally due … Continue reading Curcumin: The Spice of Life
I apologize for my woeful absence of late. I would love to promise that it won’t happen again and that I’ll be the ever loyal, prompt and courteous host from here on out, but if you know anything about Myalgic Encephalomyelitis, you know I’d be lying, no matter my intentions. So instead, I’ll tell you … Continue reading A Most Unreliable Woman