Friends in Australia’s parliament for people with ME and chronic fatigue syndrome

It’s heartwarming to see lawmakers in Australia giving ME/CFS patients serious consideration and support by forming a parliamentary friendship. This group will provide a forum for members of the House of Representatives and senators to meet and interact with representative groups and scientists studying ME and CFS. Congrats Australia!

ME Australia

by Sasha Nimmo

Three senators have formed a Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia’s federal parliament.

The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John,  Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore.

This group will provide a forum for members of the House of Representatives and senators to meet and interact with representative groups and scientists studying ME and CFS.

“For too long people who journey with ME or CFS have been ignored, belittled and written-off by society and their government. I am thrilled to have established this Parliamentary Friendship Group because in it there now exists a forum in which the voice of the community can be heard and can provide parliament with guidance as to how it might, as an assembly of your representatives, best fulfil those responsibilities to you that it…

View original post 210 more words

Advertisements

Again, My World Shrinks

I probably shouldn’t be writing this right now. I’m so full of rage I’m apoplectic. I need to get some of this off my chest. I feel like I’m one big raw nerve being used as a hacky-sack by a battalion of porcupines. I feel sorry for the one who makes me burst, because I’m … Continue reading Again, My World Shrinks

60 Day Check-in

On finishing my second month of work, I wanted to take stock of this little venture and offer an honest take of how I’m faring so far. In some ways, I’m pleasantly surprised. In others, I’m worried I’ve taken on more than I can chew. I’ve made mistakes. I’ve seen strides. It’s taking time to … Continue reading 60 Day Check-in

Younger Releases Preliminary ME/CFS Subset Study Results

Jared Younger, one if the freshest minds on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome research seems to have already uncovered three distinct subsets of the illness. The first points to a distinctly viral kind which produces C reactive protein that corresponds directly with patient's reported fatigue. The second subset's fatigue correllate's directly with changes to the immune … Continue reading Younger Releases Preliminary ME/CFS Subset Study Results

Exercise: The Best Remedy for POTS

When evaluated by a physician for Postural Tachycardia Syndrome (POTS), they may or may not tell you that exercise has been found to be the most effective and restorative therapy available for those with autonomic dysfunction. Studies have found that people who opt for exercise over beta blockers, however, not only benefited by a decrease … Continue reading Exercise: The Best Remedy for POTS