Putting together a few more pieces of the dysautonomia puzzle, from the imporatance of electrolyte supplementation regardless of medications and the need to vary the amount based on activity levels.
This post was recently reviewed for accuracy and updated on 4/10/19 Head pain is an incredibly common problem for people with Ehlers-Danlos Syndrome. I have struggled with head pain for so many years that I found it almost impossible to accurately identify where it hurt whenever I was examined by a neurologist. My head hurt … Continue reading Chronic Head Pain in EDS
A presentation on the diagnosis and treatment of the most common forms of dysautonomia in ME/CFS, EDS and Fibromyaliga; POTS and NMH; including practical tips you can take advantage of at home.
After reading and researching the Oral Rehydration Salts (ORS) trial being conducted at New York Medical College, I decided to share with my doctor what I know about ORS and asked him if he felt comfortable with me giving it a try now, since we’ve had no real luck solving my own problems with Orthostatic … Continue reading Managing OI with ORS
As many of you who follow Disability Depot already know, my wife suffers from ME/CFS. In relation to this debilitating disease, she suffers from Orthostatic Intolerance, as well. Orthostatic Intolerence, or OI, is the inability to remain upright without suffering a number of symptoms which range in severity from nausea to passing out. As a … Continue reading Get Up, Stand Up: New Study Financed For OI Sufferers.