Putting together a few more pieces of the dysautonomia puzzle, from the imporatance of electrolyte supplementation regardless of medications and the need to vary the amount based on activity levels.
One of the things that has kept me away from my blog for so long are fits that I have self diagnosed as paroxysmal dystonia. At this point, they are self diagnosed because my Neurologist-make that FORMER Neurologist-thought it was simply sufficient to put me through an EEG to verify that I wasn't having epileptic … Continue reading Paroxysmal Dystonia
After reading and researching the Oral Rehydration Salts (ORS) trial being conducted at New York Medical College, I decided to share with my doctor what I know about ORS and asked him if he felt comfortable with me giving it a try now, since we’ve had no real luck solving my own problems with Orthostatic … Continue reading Managing OI with ORS
As many of you who follow Disability Depot already know, my wife suffers from ME/CFS. In relation to this debilitating disease, she suffers from Orthostatic Intolerance, as well. Orthostatic Intolerence, or OI, is the inability to remain upright without suffering a number of symptoms which range in severity from nausea to passing out. As a … Continue reading Get Up, Stand Up: New Study Financed For OI Sufferers.