Be sure to stop over at #MEaction and sign their petition to stop Graded Exercise Therapy trials being performed in the UK on children and adults. In light of the analysis performed on the full data that was finally released, it is inhumane and completely without value to continue subjecting people with ME/CFS to such … Continue reading End GET trials on Children and Adults w/ ME/CFS
PACE
PACE Trial Data Released
Republished from QMUL Releases the PACE DATA Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a recent tribunal, on the last possible day to lodge an appeal against the court’s order. The move follows the publication three … Continue reading PACE Trial Data Released
21st Century Leper: ME/CFS
At the Summit on Fatigue and Health, Dr. Leonard Jason provides an excellent description of the many trials and tribulations of people who are struck down by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). As a sufferer of ME/CFS, I can attest to the accuracy of the picture he paints throughout his presentation. It's probably one of … Continue reading 21st Century Leper: ME/CFS
