The underdiagnosis and treatment of Craniocervical junction disorders are experienced worldwide, in both private and public healthcare systems today. We will explore this phenomenon through the use of two primary sources; a review of current literature available on the subject and direct patient feedback I collected through interviews conducted in writing with people who have been diagnosed with Chiari and craniocervical instability (CCI), also known as Occipitoatlantialaxial Hypermobility.
Why meeting Mandy Harvey and seeing her perform turned me into a big weepy marshmallow at the Lead EDS conference, along with her recorded interview and performance.
Tooling around WordPress today, I found this interesting book review on a great resource for us Zebra peeps, so I thought I'd share it. It's definitely on my list, now: Book Review: 'Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder'
Editor's Note: This post was checked and updated as necessary on 4/14/19. Thank you. In this presentation, Jeannie Di Bon discusses how persons with Ehlers-Danlos Syndrome (EDS) can strengthen their core using Pilates; from the 2017 Ehlers-Danlos Society Global Learning Conference held this year in Las Vegas. https://youtu.be/sNZV4xT0I7A For the presentation slides, go here.
This doctor lead presentation discusses autonomic dysfunction in EDS, such as orthostatic intolerance, neurally mediated hypotension and postural orthostatic tachycardia syndrome.