Like most disorders and syndromes that fall into the spoonie category, mast cell activation disorders (MCAD) are incurable. MCADs are often caused by genetic mutations, whether they’re primary like systemic mastocytosis, or secondary (comorbid), which is often the case in mast cell activation syndrome (MCAS). In my last article, Are Most Spoonies Suffering from MCAD, … Continue reading MCAD: Prevention & Avoiding Triggers
Are Mast Cell Activation Disorders (MCAD) being missed and heavily under-diagnosed in a large portion of patients with chronic illness? Could these easily misunderstood conditions be the cause of the rapid fluctuations in your health? Do you start out having a great day, only to have your energy levels plummet within hours or moments of … Continue reading Are Most Spoonies Suffering from MCAD?
It’s World Suicide Prevention Day. I’m not going to pretend that I have all the answers or that I can provide some sort of step by step guide of what you should do if you’re feeling suicidal. There are a million of those out there and I don’t know how useful they are, to be … Continue reading The Year I Wanted to Die
A video discussion about dealing with flashbacks triggered by fluctuating hormones and other spoonie issues.
Trying to make sense of ever-growing allergic reactions and their fall out--could it be MCAS that's been haunting me all these years?